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CITY, N.D. (NewsDakota.com) – A Grace City family is celebrating a newly passed bill that will potentially allow them to take part in using an experimental drug to help fight a rare disease.

The Kulsrud family has three boys currently diagnosed with PKAN, a form of Neurodegeneration with Brain Iron Accumulation. Right now, a cure doesn’t exist to help treat the rare disease, but an experimental drug that is not approved for full distribution may be the answer.

On March 18th, 2015, Governor Jack Dalrymple signed bill SB-2259, otherwise known as the North Dakota Right to Try bill. According to the family, the bill does not mean that they will get the experimental drug right away as it will have to pass manufacturers’ Phase I clinical trials. Once that is complete and pending results, the family will have the potential to use the drug RE-024.

Originally, a petition was being circulated sometime last year to expedite the FDA for accelerated approval of the drug. Jay and Laura Kulsrud are the parents of Lane, Tanner, and Ty. Each of the three boys have been diagnosed with PKAN.

If you want to follow the Kulsrud family, click here. To learn more about the Right to Try Bill, click here.