TOWER CITY, N.D. (NewsDakota.com) – A 4th grade Maple Valley student diagnosed with Limb-Girdle Muscular Dystrophy (LGMD) has been granted a Make-A-Wish.
On Friday, February 22nd the Make-A-Wish foundation revealed the good news to Owen Steckler that he and his family will be going to Hawaii on March 8th.
The Maple Valley School district and their students had a big ceremony and celebration for Owen at the school in Tower City.
His mother Amanda said this rare form of Muscular Dystrophy affects Owen’s hips and shoulders and puts stress on the heart and lungs. She said they go to a treatment clinic in Sioux Falls, SD every six months and he’s also part of a clinical trial for gene therapy in Columbus, Ohio.
A benefit for Owen Steckler will be held on May 4th at the Maple Valley School in Tower City from 11am to 3pm to help the family defray medical costs associated with Owen’s Muscular Dystrophy.