Young Cooper Paulson is one of many others who suffer from Cystic Fibrosis. Photo submitted
JAMESTOWN, N.D. (NewsDakota.com) – Cystic fibrosis is one of the most common fatal genetic diseases in the U.S. today.
The average life expectancy of some with Cystic fibrosis has greatly increased in the past few years with the median age of survival at around 47 years. Pam Thompson is the Development Director for the Cystic Fibrosis Association in Bismarck.
Thompson states the disease is progressive and causes persistent lung infections and limits the ability to breath over time.
While it may seem scary for parents, Thompson adds that there has been a lot of development in modern medicine to combat the disease.
Local parent Erin Paulson is one of the many who have the dormant gene that causes Cystic Fibrosis. A mother of five, her 5 year-old son Cooper was born with Cystic Fibrosis.
Paulson says Cooper is now thriving with help from vest treatments, nebulizers, supplemental feeds, and digestive enzymes, it takes roughly 27 pills every day for him to battle Cystic Fibrosis.
She adds any parent should seek more information from professionals and others who have dealt with the disease.
Thompson adds that what the Cystic Fibrosis Association does is help assist with the medical costs and expensive prescriptions for what can be live-saving for many.
Paulson says while it’s been difficult, she’s appreciative of the Cystic Fibrosis Association and support of many she’s met.
For further information on Cystic Fibrosis, you can visit cfand.org or call the Cystic Fibrosis Association in Bismarck at (701)-222-3998.
Listen to a full Let’s Talk About It with Pam Thompson and Erin Paulson below:
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01/21/25 - Let's Talk About It; With Dr. Roxanne Keene
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12-2-24 - Let's Talk About It - JRMC
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11-26-24 Let's Talk About It - Jamestown Chamber Update
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11-25-24 - Let's Talk About It - Community Thanksgiving Dinner
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11-7-24 - Let's Talk About It - Jamestown Parks and Rec Update
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11-4-24 - Let's Talk About It - JRMC November 2024
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10-29-24 - Let's Talk About It - Victory Lutheran Trunk or Treat
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10-28-24 Let's Talk About It - James Valley Pheasants Forever
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10-25-24 Let's Talk About It - Joe Rector - JRVLS
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10-23-24 - Let's Talk About It - Ladies Ag Night
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10-21-24 - Let's Talk About It - Jamestown Chamber Update
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10-21-24 - Let's Talk About It - Washington PTO Fundraiser
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10-18-24 - Let's Talk About It - Libby Kidder - McDonalds Dakota Drive LLC
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10-4-24 - Let's Talk About It -National 4H Week - Reanna Schlecht
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10-4-24- Let's Talk About It - National 4H Week - Leo Lahlum
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10-3-24 Let's Talk About It - National 4H Week - Abi Ryun
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9-5-24 - Let's Talk About It - JRMC September Update
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8-22-24 - Let's Talk About It - Cavendish Days
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8-22-24 - Let's Talk About It - Jamestown Chamber - AI Event
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8-22-24 - Let's Talk About It - Carmichael Classical Christian School
KQDJ Podcast
The KQDJ Podcast is your direct link to the latest local information from Jamestown and the surrounding area including Blue Jay and Jimmie Sports and Local News and Events. Catch local sports with Jarin Matheny as he chats with local coaches and players. You can also hear previous game broadcasts and interviews. Listen to Let's Talk About It, a community focused show highlighting area events and non-profits in Jamestown and Stutsman County. Let's Talk About It can be heard every Monday through Friday at 6:30 AM on Jamestown 107.1 FM.